Archive for April 20th, 2010

In Which My World Lupus Day Idea Becomes Reality And Comes To Fruition

April 20th, 2010

All that I can really say right now is wow and thank you. I never thought in a million years that my crazy idea to help bring attention and awareness to Lupus would come to fruition and be a reality. I want to thank everyone who helped by giving me ideas. I am actually quite amazed and impressed with myself as well. I tweeted my idea, I put it on Facebook and I blogged about. Within hours, I got feedback, both in public and private. I sat on the idea for 24 hours and then the “how” I would execute it flashed inside of my head. And within hours, the beginning of the final project had been created and you can now go check it out at http://lupus.juliasherred.com. When I posted my blog two nights ago, I thought it would be at least a week before anything concrete would happen where I could create a dedicate site for it. Again, thank you everyone for coming so quickly on board with this, spreading the word, giving ideas and making another of my crazy ideas a reality. It really would have just stayed a crazy idea without your support. Thank you! Thank you! Thank you!

And just to give you little summary of what you can find over on the dedicated site, here is the front page write-up:

Welcome to World Lupus Day: A Virtual Gallery To Bring Awareness To Lupus.

Hi, my name is Julia “Jules” Sherred and I have Lupus. Some of you may already be familiar with my story and others may not.

My story is long and it has been a difficult one. This may be one of the only things I may be able to say that will link my story to all others who live with this disease. Lupus has a thousand faces and often times this makes it difficult to adequately explain what exactly Lupus is. Many people have no idea what Lupus is or how it works.  Sure they hear the phrase thrown around as some sort of catchphrase or meme but many remain unaware of what Lupus is outside of hearing in on some television program. Even the medical profession is still trying to find some much needed answers in an effort to unravel the mystery of this disease. And this is one of the reasons I decided to create this site.

One night I was sitting and thinking of possible ways to do something grand in honour of World Lupus Day. I wanted to do something big-ish. Something, regardless of where someone lived, they could participate. The only concrete idea I had was that I wanted it to have a heavy butterfly theme. Of course, other motifs and themes are more than welcome. I wanted to gather art, music, crafting, videos, stories, poems, anything anybody could think of to bring even a little bit more awareness to this disease outside of some catchphrase. Something artsy and multimedia. Something in which anyone can collaborate and contribute to despite their talents. I blogged about it and for some reason I didn’t think it would go far. In less than 24 hours, I had some amazing responses and was given many ideas that would enable me to put this “thing” into motion.

Below, you will find links to many ways in which you can help. You can choose to jump on board an existing project or if there is not a project already listed that you feel would be a good one, there is also a link to suggest new projects. I ask that all projects be completed by May 8th and any associated media (pictures, videos, stories, poems, etc.) be sent to me by Midnight PDT on that same date. That will give me 2 sleepless days rearranging the site so that it may become a virtual art gallery dedicated to Lupus, Lupus awareness and above all, dedicated to every person affected by this disease whether a sufferer or family member. Then on May 10 at 12 am PDT, the transformation from caterpillar to butterfly will be complete and all of our efforts can flutter out to the world.

In order to make this as successful as possible, I have created a Facebook event. Please invite every one that you know. As well, please pass on this URL to as many people as possible to make this event as big-ish as possible. If you have any questions or if you have media to send me for this project, please email me here.

Again, thank you.