In Which I Tell My Story And Talk About My Thousand Faces Of Lupus

April 26th, 2010 by Jules Leave a reply »

In response to my World Lupus Day project, you asked your questions about my lupus and I did my best to answer them. The podcast is long. 2 hr 28 min 42 sec and 136 MB. The first 1 hr and 26 minutes or so, I talked about the physical faces of my lupus. The last hour and a bit, I talked about the emotional faces of my lupus. And it is certainly emotional. It is the most open and honest I have been in public about this part of my lupus.

After I had finished it, I had many thoughts of “Crap! I forgot to say this! Shit! I forgot to say that!” I was going to write about all the things I forgot until I listened to it before saving it. I’m just going to leave it as is. I will warn you. You may either want to grab a box of tissue or maybe not listen. There is also a couple instances of NSFW language. Despite how afraid I am at the moment, I do hope that you listen to the entire almost 2.5 hours of it. Hopefully, some real awareness will result. As I said in the podcast, if you have any other questions as a result of this, please leave them in the comment section and I will do this again.

Thank you for taking the time. To download, right click save as this link or listen below.

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5 comments

  1. Joe Covenant says:

    Emotionally charged.
    Funny.
    Sad.
    Weird… ;’ )

    Jules is all these things.
    Please listen.

  2. JoAnn says:

    Ten minutes to 4 am…just finished listening. I think I understand “It’s complicated” better now.

  3. Jeni says:

    Hi, I felt compelled to leave a message having listened to your podcast to applaud your bravery in putting it out there, I have lupus, and I identified and empathised with much of what you spoke of, but I lack the courage to tell my story! I am however currently making beaded butterflies to submit to the ‘butterfly kisses’ project, I hope the whole project is a great success, and I thankyou again for sharing some of your story, lupus is a lonely battle x