Questions About My Lupus

April 23rd, 2010 by Jules Leave a reply »

Ever since I announced my World Lupus Day project a few days ago, I have been getting a lot of questions about my lupus, both in public and private. And for that I am thankful. However, here is the suck ass thing about it. I am going through a flare at the moment. And it is starting to totally kick my ass. I have a lot going on in my life right now and one of the retarded things about lupus (well my lupus anyway) is that when anything extra happens (whether it is good or bad), the added stresses impact me in big ways. The thing being attacked the worse at the moment is my brain. Because of this, I have been finding type communication that much more difficult.

I want to answer your questions. It is very important to me that I answer your questions. But I feel to answer them properly, I cannot do so in text format. It literally hurts to do so, both physically and mentally. So this is what I am asking. PLEASE PLEASE PLEASE ask you questions. Leave them here in the comments section. Then on Sunday night, I will answer them in audio format and upload it as a podcast. I may even include some relevant chapters from my book. I will try not to cry this time a I did when I read the introduction when I was interviewed by TMA but somehow I think that will prove difficult.

Any questions that come in after Sunday, I will still answer them but I cannot guarantee how quickly I can get to them as the deadline for my World Lupus Day project gets closer. I need to conserve my energy at the moment if I am going to get this done.

You really all are truly awesome and you’re support has been so overwhelming.



  1. Graham Porter says:

    I currently working on a song for your project, but as someone with no experience of lupus at all, I would be interested to hear the relevant sections from your book. Wikipedia clearly lacks the heart of the subject. Thank you.

  2. Nuclear Wizard says:

    1) Do all flares have the same symptoms?

    2) Could you describe your current flares

    3) How many flares do you have a year? And how long to they last?

    4) How much medication do you need to keep track of?

  3. Will says:

    How do you know it’s lupus?

    Is it psychological, or just physical? (Why does text-based communication suck?)