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October 16th, 2010 by Jules Leave a reply »

Holy exhaustion, Batman! But for the first time in quite awhile, I’m very content with this exhaustion as it is the result of more positive events than negative. Yes, part of the exhaustion is a result of this never ending Lupus flare. The majority of it though, I’d have to attribute to a couple of weeks that have been out of this world and coming down from a really big adrenalin rush. My life is feeling quite surreal at the moment, filled with a lot of beyond HOLY SHIT moments. And for the first time in like forever, I don’t feel bad bragging about them. I don’t feel any guilt giving myself a well earned pat on the back. Just over one month ago, this was not the case.

I mentioned in my last blog, that the wonderful Phil Plait sent a tweet about the book I created for the Lupus Awareness Virtual Art Gallery. That was super awesome of him and caused me to squee. This project is obviously of super importance to me, so it is beyond words wonderful when someone who has more influence than I do agrees to help promote it. And just as I was getting over the glow of that, Stephen Fry sent a tweet about it. I could have vomited due to excitement.

The first email I read on Monday morning was to let me know that a tweet would be going out on Wednesday regarding it and at what time. It was very nice to receive a warning so that I could alert my host and prepare for the overload of traffic. It was also the best way I could have started my week. However, hardest damn moment of squee to keep to myself. I thought I was going to explode while I waited.

I knew there was no way I was going to sleep the night that the tweet was to happen. Are you kidding me? This is Stephen Fry! And even so I was stupid with giddy over Phil’s tweet, for me there is the difference between the two. Phil was on my radio show when it was on the air. Phil helped me out with my book, From the Mundane to the Insane. Phil has linked to Geeky Pleasures and this blog a few times now and the list can go on. Each time Phil does these things, I get stupid with giddy. However, even so I’ll never probably get completely use to it for a million different reasons, he is different than Stephen Fry. Stephen doesn’t know me from Adam, where as Phil knows me to a certain extent. And well, obviously Stephen’s influence is a bit more far reaching. Now that I read what I’ve written, I’m afraid that it may sound a wee bit smug. I hope not. I’m still just really dumbstruck over the overwhelming nature of it all.

This has been a really good month for Lupus awareness. Before the month started, Wil Wheaton and John Scalzi released Clash of the Geeks, where all the proceeds are going to The Lupus Alliance of America. And then Phil and Stephen help promote my pet project… four people whom I have the hugest respect for have done things to make this Lupus warrior “obnoxiously happy” as one person put it. I’m content with things. I feel as if I’ve made a difference, even if it is a small difference. And for me that is very important. I need to feel that. It helps me to come to terms with living with this terrible disease. And for once (but only on Wednesday), the stupid House jokes didn’t bother me. I actually found them humourous considering Hugh Laurie and Stephen Fry are good friends. I did feel sorry for Stephen though, as his reply stream on Twitter was filled with them and he probably missed all of the thank yous he received.

Now if that isn’t enough to put some much needed sunshine in my life, I started on another project this week. As if I wasn’t busy enough with Geeky Pleasures, the art gallery, this blog, The Lupus Magazine, Nerds in Babeland and Star Wars vs Star Trek. But the art gallery will be done with its updates in two more weeks (until May), The Lupus Magazine is monthly, Nerds in Babeland and Star Wars vs Star Trek are whenever I find time, this blog whenever I’m inspired, leaving Geeky Pleasures as my only daily thing. This new project is quarterly and it is another cause which is near and dear to me. That is all I’m going to say about that for now but it really is something that I am extremely proud to be a part of. There should be a full announcement regarding it on Geeky Pleasures this week.

Those who’ve read my blog for awhile now know this past year and a bit has been very rough on me. My health has not been cooperating. Money has been a huge issue. On some days, things in my personal life can be enough to drive me to scream. But you know what, I’m content. My ass may be getting kicked at the moment but I’m still kicking ass in return.

And from time to time, I think it is okay that I give myself permission to say, “Look world! I’ve done something pretty damn groovy!” and not worry that it looks like I’m being boastful or vain. Now if only I can get back to feeling as if my life is real (who am I trying to kid, right?).

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4 comments

  1. You do kick a lotta ass, that can always be said. :)
    And I saw a lupus awareness billboard while we travelled and thought of you and all you are doing for this. Am very proud, it’s good to know you :)

  2. IanMcL says:

    Hi Jules

    I think not only is it ok to say ” Look World I’ve done something pretty damn groovy” but is an absolute prerequisite!

    I’m loving your blogs and your company :)