I live in a cone of silence. Meaning, my suite is very much sound proof. It is rare that I hear the noises from the outside world. Today, my cone of silence was broken. Most likely this is due to the fact I was on extra alert as I waited for a much anticipated package to be delivered by FedEx.
I had difficulty falling asleep last night. It may as well have been Christmas Eve. My thoughts were going at warp 10 as I wondered what was in store for me once “Love Simple” arrived at my door and I could finally sit down and watch it in preparation for my interview tomorrow morning. You see, judging by the trailer for the movie, I have a funny feeling a lot of what I am about to see will mimic my own life. Especially when it comes to having “the talk” about the elephant that takes place when you form real relationships. I have a feeling it will be a weird and wonderful experience watching part of my life played out on screen. Especially as most people have no idea what lupus is.
This morning, I awoke much earlier than I normally would. I was one edge (a good edge) anticipating the arrival of the package. Now, I was like a kid on Christmas morning waiting for the house to wake up. I had difficultly focusing on my tasks for the day. I was pacing the corridors of my mind, daydreaming about what my evening had in store. I kept getting out of my chair and peering out through the cracks in my blinds any time there was a hint of noise coming from the outside world. And then the deliver van arrived minutes after tweeting, “I feel like a kid on Christmas morning waiting for the house to wake up.”
I jumped out of my chair and leaped to the window to see if the vehicle, which had just pulled into my driveway, was in fact the package. Seeing that it was, I gave a little squee and ran to my door. What was about to happen was all kinds of weird and wonderful. I opened up the door just as the delivery lady was about to ring my doorbell. I am going to try and recount this amazing tale as accurately as possible, but it an hour later and I am still shaking.
Delivery lady, “Wow. You must have been waiting with great anticipation for this package.”
Me (barely able to contain myself), “I was!”
Delivery lady, “You are like a kid on Christmas morning.”
Me, “I am!”
Delivery lady, “What is in this package that has you so excited?”
That is when I began to recount the story. The story of this movie called “Love Simple” and how it about this girl who has lupus. Before I could get any further, she interupted.
Delivery lady, “Does this affect you personally? Do you have lupus?”
I told her that I did have lupus. That I have SLE. Tears began to swell in her eyes as she told me that she too has lupus. She has discoid lupus. She said how she knows that it is not as bad as what I am going through as discoid lupus is not as severe as SLE but that she gets it. Tears began to swell in my eyes and my hands could not stop shaking, which caused the package to rattle.
I gave her a quick synopsis of the movie. How this girl who has lupus falls in love and has to tell this dark secret to her romantic interest. How that conversation is the worst conversation to have to have with someone. How I myself have had to have it more times than I want. Her eyes swelled with tears even more as she nodded her head and quietly said, “I have had to have that same conversation more times than I want as well. I know how difficult it is. Not many people are aware of what lupus is. It is not easy.”
I then told her how I kinda interview people and do things “on the web” in an effort to raise awareness and funds. I told her about the interview that I have tomorrow morning with the actress who plays the main character and how difficult it will be as it hits so close to home.
We stood there and stared at each other in silence for what felt like an eternity. In reality, it was probably only a few seconds. We both seemed to have the same revelation at the exact same moment that there were no more words that could be said. That this weird and amazing set of circumstances are much too profound for that. We both understood what the other was thinking. We both “knew” equal amounts of pain and joy were being felt by both parties, as we stood on my doorstep.
Before she left she told me that this was the best delivery she could have ever made. Neither one of us expected to have made that type of connection with someone today. The odds of one person with lupus delivering a movie about lupus to another person with lupus are staggering especially as only .0007% of the world’s population has lupus.
She started to walk away but quickly turned back to face me and say, “Thank you for sharing this with me. Thank you for doing what you are doing. More awareness needs to happen. I am very happy and fortunate to be the one who got to make this delivery today. I hope you enjoy your movie.” I thanked her in return and with that she walked away as I closed my door.
I came back into my room, barely able to breathe and my muscles seizing up with nervous energy. The sheer awesomeness of today’s random events will be one that will never be forgotten and I will take it with me for the remainder of my days. We were both able to touch each other deeply and in a way that does not happen often.
I may be forgetting a few things as I recount this tale. Some of the dialogue may not be completely accurate. But my mind has been blown again and my heart and soul touched. I seem to be having a lot of experiences such as these as of late. So please forgive me if my database of a brain decides to sputter for a few moments while it tries to grasp the awe of these events.
























